The SARAH project
Supporting vaccination discussions between parents and health professionals
What is SARAH?
SARAH stands for Support And Resources to Assist Hesitant parents with vaccination.
It is a system to be embedded in primary care that aims to optimise communication and the use of tailored resources during vaccine discussions.
Who is SARAH?
The SARAH Collaboration is a group of researchers with specific expertise in vaccination, each aligned with an independent research organisation. Some of us are medical doctors. Some of us are nurses. Some are social scientists. And some are health communicators. We are all parents. As advocates for child health, we support vaccination. As parents, we understand and respect the challenges of raising children. As health professionals, we understand the demands of busy clinics.
Our aim is to help parents and professionals together make the best decisions for children. We believe the best decisions are made when we approach one another with respect, value one another’s autonomy, aim for good health outcomes and, above all, avoid causing harm. These are the values that guide the work of the SARAH Collaboration.
What will SARAH do?
In consultation with parents and health professionals, the SARAH Collaboration will build a suite of resources for health professionals and parents or other carers of babies and young children, designed to support conversations about childhood vaccination. The resources for parents will provide current, evidence-based information about vaccines and the diseases they prevent. The resources for health professionals will be designed to help them to present accurate vaccination information at the right time, in the right amount, and present it in the right way for each of their patients. Because the resources are all about sharing knowledge between parents and health professionals, we have chosen to publish our resources under the brand, SKAI – Sharing Knowledge About Immunisation.
The SKAI resources are shaped by best practice in health communication and informed by parents and health professionals to ensure that they meet the needs of both groups.
What are the components of the SARAH system?
1. Resources for parents: Our first resources are a series of five fact sheets addressing the five concerns most commonly expressed by Australian parents. We chose these five concerns based on research conducted in Australia and overseas, and confirmed by our research investigating healthcare professionals’ experiences talking with parents about vaccination. These SKAI Q&A sheets are available from the Immunise Australia website.
- How are vaccines shown to be safe?
- How do vaccines affect immunity?
- Why is the schedule the way it is?
- What about autism?
- What is in vaccines?
2. Resources for health professionals: These will include tips to improve communication between healthcare providers and parents, conversation vignettes, and a referral option for parents who need a longer conversation with a specialist in childhood vaccination. Research with GPs and nurses has already provided rich insights into the challenges they encounter when discussing vaccination with parents in busy clinics and general practices. Feedback from health professionals will be sought regularly and used as the basis for continual improvement of the system.
3. Training for health professionals in using the system: This is under development and we will be working closely with GPs, vaccinating nurses and experts in medical education to ensure that the system can be integrated seamlessly into established clinics.
4. Digital platform to house the system: This is now being tested through a collaboration with the Australian Institute of Health Innovation.
Meet the SARAH team
- Julie Leask, Nina Berry and Lyndal Trevena are researchers from the University of Sydney. Julie and Nina work in the School of Public Health and Lyndal is the Head of the Discipline of General Practice at the Sydney Medical School.
- Margie Danchin is a researcher at the University of Melbourne and Murdoch Children’s Research Institute and a paediatrician at the Royal Children’s Hospital in Melbourne.
- Kristine Macartney is a researcher at NCIRS and a paediatrician specialising in infectious diseases at The Children’s Hospital at Westmead.
- Tom Snelling is a researcher at Telethon Kids Institute in Western Australia.
- Paul Kinnersley is a researcher at Cardiff University in Wales.
- Holly Witteman is a Human Factors Engineer at Laval University, Québec in Canada.
- Kerrie Wiley is Director of Social Research at NCIRS and NCIRS liaison for the SARAH project.
- Penelope Robinson is the Project Manager based at the University of Sydney.
We are a diverse and truly interdisciplinary research team, bringing together expertise in Health Communication, Human Factors Engineering, Implementation Science, General Practice, Nursing, Medical Education, Vaccinology and Paediatrics.
We also consult with a wide network of experts. Melina Georgousakis at NCIRS provides technical advice on vaccinology. Hal Willaby at the University of Sydney was involved in early development of the SARAH concept. Maria Chow at the University of Sydney is translating the SKAI resources into Chinese characters. Melinda Hassall at James Cook University analysed our interviews with health professionals. Overseas, Cath Jackson, Francine Cheater, Helen Bedford and Nick Sevdalis were involved in early development, supported by a University of Sydney International Program Development Fund. We continue to consult with parents, health professionals and immunisation program managers.
How is SARAH funded and administered?
We do not accept any funding from the pharmaceutical industry. The SARAH project is funded by the Australian Government Department of Health. It is a partnership between researchers from the University of Sydney, NCIRS, the University of Melbourne, Murdoch Children’s Research Institute, Telethon Kids Institute, Cardiff University and the University of East Anglia. Some of the early research that has informed the SARAH project was provided by the University of Sydney and the Sydney North Shore and Beaches Medicare Local (which has now been replaced with a Primary Health Network). Our current funding will enable us to develop effective communication tools and work out how best to integrate them into clinics and general practices. We expect to complete these tasks by 2018.
The SARAH Advisory Group provides advice on the scientific direction and governance of the project. The members of this group are:
- Professor Terry Nolan, Melbourne School of Population and Global Health, University of Melbourne
- Ms Karen Booth, President, Australian Primary Health Care Nurses Association (APNA)
- Dr Greg Rowles, General practitioner
- Dr Elizabeth Marles, Royal Australasian College of General Practitioners
Last updated May 2016